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Impacting on You Newsletter – July 2020

Please click on the FLOWER to read the July Newsletter.

Portsmouth Parent Voice Support Service Fundraiser

Fundraising to support families of children with special educational needs and disabilities to minimise isolation through phone and video support.

Natalie’s Blog Part 5

So we have made it to June, at times days have been blurring into each other.

It’s not been easy juggling everything and at times I have had to step back and just breathe.

As a parent and working I decided to allow my little dude to return to school. I found this decision extremely hard to make, working out the best plan for my little dude in co-production with his school and medical professionals made it a lot easier.

Of course I was concerned how they would meet his EHCP needs, I still am due to the constant government changes.

With things constantly changing I feel as a parent I am on constant catch up, but talking through my concerns with his SENCO, friends and family have made it more manageable.

I have two teenagers at home who are now starting to struggle with the return to a somewhat normal life, they have been extremely anxious about doing something wrong and struggle to cope with the daily changes.

Over the past few weeks I have also seen the strain lockdown has put on their sibling relationships, which I’m sure we’ve all seen an escalation of some sort during lock down. I have been using NVR and the restorative questions to help resolve any upset which seems to be working.

I’m hoping the sibling escalation will now settle that everyone is having some time out and that they are socializing with young people their own age.

I’ve definitely been making the most of the all the social and emotional resources the school have been sharing online to help my little dude over the past few weeks, although as a parent I don’t think there has been much SEMH support for my daughters who are in college.

One thing I am hoping will continue is all the good that has come out of lock down.

I have enjoyed CAMHS dropping off my little dudes prescription and I think video call appointments are a good move for some appointments and some educational and health related courses.

PPV have spent the past month settling in to working remotely, there have been many pet and family appearances during Zoom meetings but that’s all part of working during the current circumstances.

PPV have now had our first drop in session and our first virtual training session which was really successful, don’t get me wrong there were the odd tech issues but I think the more we try new ways the more we learn.

This has been a huge team effect and with the support of our incredible parent carers we are starting to now find our feet.

We have recently submitted our Contact Grant Forms which we did in co-production with parent carers and we have now looked at other forms of funding to increase our parent carer support.

We have been busy working behind the scenes on the ND project to make sure we can start up the coproduction group and run the training as soon as its safe too.

We are running more SBFT and co-production sessions to keep up with the increase of work load, since lock down we have had over 20 Zoom meetings.

PPV are also planning to do a redesign of our website in the coming months.

Please keep checking our social media pages for updates, news and events.

Here Is the link to our website contact page you can reach our team or sign up to our mailing list here http://www.portsmouthparentvoice.org/contact/

Stay safe and well.

Kind regards, Natalie.

Portsmouth City Council Supports Black Lives Matter

As a show of support for the Black Lives Matter movement, Portsmouth City Council lit the Emirates Spinnaker Tower in purple on Sunday evening, and it will remain lit for a week.

Lord Mayor of Portsmouth, Cllr Rob Wood, said: “Following the tragic death of George Floyd and the Black Lives Matter protests in the USA and UK, city council recognise it is important that it shows its support for the Black Lives Matter movement, and stands with those from the city and around the world who continue to experience racism and discrimination. The Spinnaker Tower is the city’s most visible symbol – lighting it in purple is a demonstration of our commitment to making change happen.

“As a city we must continually strive to be a better society tomorrow than we were today. We must start by recognising and acknowledging the discrimination that still exists. We must listen to those who continue to live with discrimination, so we can understand, respect and learn from their experiences. We will start by listening to the whole community so we can work together to make real change happen.”

Virtual Support Sessions

AUTISTIC PEOPLE  – SUPPORT FOR PARENTS AND RELATIVES DURING THE CORONAVIRUS.
Autism Hampshire is providing virtual support sessions in Portsmouth for parents and carers to provide information about managing anxieties and daily routine with an autistic child or young adult at home.

PPV Covid-19 Plans

The current situation is very worrying for many families. The thought of your family having to be separated due to illness is incredibly concerning. Portsmouth Parent Voice have  worked in co-production with local parents and professionals to produce three documents.

The first is a family crisis plan to help ensure you have everything you need to hand to keep your family safe in the current situation. 

The second is a plan for if the main carer has to leave the family home for example a hospital stay. 

The third is for when a child/young person has to go into hospital alone/stay alone, this form can go with them to ensure staff know how to best meet their needs. 

PLEASE CLICK HERE TO READ THE PLANS.

ALERT!! AN IMPORTANT MESSAGE FROM A CONSULTANT PAEDIATRICIAN AT QA HOSPITAL.

“We would like to reassure families and carers that we continue to operate our normal acute paediatric services at QA.  Staffing remains good, we have adequate PPE supplies and we are able to assess and admit children safely.  We are able to allow one parent or carer to remain with their child during their admission to the Paediatric Unit at QA.  We will continue to work in partnership with families and carers to consider each case and allow carers to swap or spend time at home if needed.”

If you need to attend the paediatric department QA Hospital please do not hesitate as every minute matters when saving lives.

PPV Covid-19 Survey

Please take 2 minutes to answer PPVs questions in regards to respite during COVID – 19, we are currently working in co-production with the LA and CCG to create an offer of respite.

Your feedback would be greatly appreciated.

Click the Clipboard to complete the survey.

Newsflash: Covid-19 Update from The Council for Disabled Children

The Council for Disabled Children (CDC), following the Minister’s request, has launched two new email inboxes aimed to answer questions, collate resources and share information on Coronavirus and the impact on children and young people with Special Educational Needs and Disabilities (SEND). They are designed to be used by professionals, practitioners, parent carers and families of children and young people with SEND.

The new ‘CDC questions’ inbox, CDCquestions@ncb.org.uk, provides the opportunity to ask questions about how Coronavirus will impact on children and young people with SEND as well as other questions relating to the impact on families; the education, health, social care sectors; and the voluntary and community sector. We will collate Frequently Asked Questions (FAQs) and share them with the Department for Education (DfE) and Ministers as appropriate, in order to publish an FAQs newsflash each Friday.

Since we launched the CDC Questions inbox on Monday we have received several questions and are in the process of engaging with the DfE and other sector experts to raise issues and develop responses. These will be shared in our FAQ next week along with any further questions that we receive. In the meantime please find below information from a range of sources that can support you in the meantime:

If you are a parent carer with a question about your individual circumstances you may be able to find an answer here:

 
Stay safe and well,
The CDC Team