Posts by admin

The Transition Event Hub – Free Online Event

Following the success of the first online transition event last November, The Transition Event Hub are thrilled to be bringing this virtual event back in May. They understand that whilst the covid-19 pandemic continues to bring uncertainty, the support needed by young disabled people and their families is more important than ever.

With access to services, information and events like this being limited, the Transition Event Hub brings experts to talk about the different transition topics, aims to help answer your questions, and arm you with the most up-to-date information so you can best support your disabled young person and safeguard their future.

This year, the Transition Event will run throughout May, with webinars happening each week. You’ll also have the opportunity to explore dedicated zones full of useful articles and videos. Register for free today.

Dynamite Update from Carly Blake

dynamite-portsmouth

The neurodiversity profiling tool is being used in schools to help teachers to understand a child’s needs better.

We’ve been working on the profiling tool by creating easy-read versions of the profiles for young people.

We are now creating video podcasts based on these profiles to raise awareness and understanding for young people and their carers.

They will help young people to join in with conversations about their support needs.

We want to focus on the positives of neurodiversity, and let people know that it is never a bad thing to think differently to other people.

If young people (aged 14-25) would like to join in with helping us make these profiles they can email dynamiteportsmouth@gmail.com or phone/text 07905682886

Update from Carly Blake – Young Persons Neurodiversity Lead

Natalie’s Blog Part 9

Wow its already April! The months have flown past and we are now getting to enjoy the lovely sunshine and company we all have missed.

PPV have been going through many changes over the past few months. We are currently in the process of moving offices and we will hopefully be settled in within first few weeks of May.

PPV have been busy with the increase of co production work within the city and have welcomed new professionals and parent reps to our monthly Shaping Better Futures Together (SBFT) co production group.

We have been working with CAMHS, PCC ,The NHS, Solent Therapies and many more services to help create and improve the services available to our families in the city.

If you are interested in joining this group please contact ppvadmin@p-d-f.org.uk.

PPV parent reps have been working hard attending meetings, events and working groups to insure families voices from across the city are heard. One of our lovely parent reps have been busy creating well-being packs for the our next PPV support group.

PPV will be restarting up face to face events, coffee mornings, drop ins and support groups in guidance with government guidelines as soon as we are settled in our new office space.

PPV are currently working hard on our Contact grant monitoring return all ready for the new application and exciting plans for the coming year.

Enjoy the sunshine and stay safe.

Challenges and Solutions to Running CAMHS During Covid-19

The COVID-19 pandemic has presented services with unique dilemmas. These are unprecedented times for which there is no clear rulebook, and Child and Adolescent Mental Health Services (CAMHS) have been affected during the pandemic. They are likely to be under strain to meet increased demand.

Please read the document below which outlines some of the challenges, and solutions, running CAMHS during Covid-19.

Digital Resource for Carers

The Portsmouth City Council (PCC) are members of Employers for Carers (an employer’s forum supported by carers UK). 

A benefit of the membership is a digital resource for carers produced for PCC in partnership with Carers UK.  This is something if you’re caring for someone with a long term condition, illness or disability.

Portsmouth City Council (PCC) in Partnership with Carers UK have a new digital resource for carers.   

Carers can access the resources via PCC website or directly from their internet browser by using login details on this card:

Carers are encouraged to make use of the resources which include easy access links to local information.

University of Reading Sensory Study

The University of Reading is currently recruiting for a study on the relationship between sensory reactivity and mood in autism. We are looking for verbal autistic teenagers (13-7yrs), OR parents/carers of autistic teenagers who speak few to no words, to participate in an online questionnaire and separate online interview. Our aim is for this research to be used to better support autistic young people presenting across the spectrum.

SWAN UK VIRTUAL INFORMATION EVENT

On Wednesday 21 April SWAN UK are running an online information event that families and professionals can attend to find out more about us as an organisation and the support we provide. 

Those who come along will be able to hear first hand about the experiences of some of the families that we support, as well as listen to talks from professionals working in different fields within genomics on topics such as:

  • What is a genome?
  • History of genetic testing
  • Why does genetic testing take so long?
  • Will any conditions still be undiagnosed in ten years time?

As part of the event we’re running breakout sessions for each of the devolved nations where organisations who provide support to families in those countries will be coming along and giving a 15 minute presentation on the services that they offer. 

We want to try and engage as many families as possible so we can connect with those who could benefit from the support we provide. We’d really appreciate it if you could share the event through your networks and with any families that you feel could benefit from coming along. 

Sign up link: https://www.undiagnosed.org.uk/events/swan-uk-virtual-information-event/

Date: Wednesday 21 April 

Time: 10:00 to 14:30 (with an hour break for lunch) 

Healthier Together

Healthier Together is a website developed by local healthcare professionals across Dorset, Southampton, Hampshire, Isle of Wight and Portsmouth

The website provides; –

·         Advice for parents, children, young people, pregnant women, and clinical resources to support healthcare professionals including standardised clinical pathways, consistent safety netting information, safeguarding guidance, and contact details for further advice.

·          Locally focussed information.

·          Links to nationally driven messages and campaigns.

Please help us to continue improving the website by telling us what you think.

PROFESSIONALS SURVEY

PARENTS SURVEY

Increasing Vaccine Confidence Resource and Portsmouth Jami Mosque Vaccine Clinic is Now Open!

The vaccine clinic at Portsmouth Jami Mosque is now open!

This was initiated by members of the community – is now open and able to offer vaccines to Portsmouth residents.

Please view the Increasing Vaccine Confidence Resource information provided and share with your family, friends and wider contacts so that more people can have the opportunity to access a COVID-19 vaccine.

Let’s vaccinate Portsmouth!